As many blog writers will tell you, through this therapy of sorts, you often receive contact from readers, and some even turn into friendships. I started conversing with my lovely friend Maggie quite some time ago when asking questions on amputee sites. Before my amputation, and when I first discovered I had CRPS, I found the lack of information out there quite astonishing, which is why I decided to write this blog in the first place. I didn’t think for a second that I would end up here, practically begging for treatment, and then finally finding that one Doctor who will help me, because of the amputee sites, and then this blog. Yes, with thanks to Maggie, huge thanks, who kindly put me in contact with her doctor, I am finally on the road to having a diagnosis, and I couldn’t be happier, or more thankful to wonderful Maggie.
I hope she won’t mind me talking of her, but she is one of the kindest people I have ever had the privilege of conversing with. She always checks up on me, and reads my posts, and her kindness has now put me on the road to treatment. For that, I am so greatfull and can’t thank her enough. I know she will read this, so to you Maggie, I thank you so so much.
So, last Wednesday I had a consultantation with a Doctor who is a specialist in stump issues. I was put in contact with her secretary, who booked the appointment. It was via zoom. I was extremely anxious, as I am so used to Doctors dismissing me and lumping everything under the CRPS brush. But to my amazement, she did not. She listened to my symptoms, and guided me through a self examination of my stump. The whole process took over an hour, which is the longest time I’ve spoken to anyone since the surgery. At the end she spoke of a couple of things which could be causing the problem, and what we can do about it. So, when I had surgery, the nerves are cut. When this happens they have nowhere to go and nothing to do, so they go a little nuts! Sometimes said nerves can also be fighting against a suture or clip put on the end of them! So she thinks that my popleteal nerve is either doing this or trapped. So the plan now is to do an ultrasound and some other tests to see if this is the case. This was the first thing which amazed me. I’ve been booked twice now for an MRI. Being told by the non specialists that this is the only way to find a neuroma. What if it isn’t a neuroma, I would ask? Well then we can’t help, they said! If I questioned it, I would be shut down and made to feel as if I had done something wrong. So to find a Doctor who is willing to explain, and say that an MRI is not only the best way, but not the only way to find issues, was just wonderful. It’s as if realising that your not mad!! So, now the plan is to await my appointment, and take the trip to East Grinstead for tests. If it shows what we suspect, then book for TMR surgery. I will explain what that is in future posts, if it is on the cards, but basically it will give my nerves a job to do, and stop them complaining so damn much!!
I honestly can’t even explain how happy I was after this consultation. Someone not only listed to me, but also may be able to help. It meant that some of those dreams which I had lost, may be achievable again. I may be able to walk again! (At least a small portion of the time, I will still have the crps! There is no cure for that bit!). But to have a chance of a reduction in the pain I’m in…and that is everything.