Oh how I miss wheeling, and handcycling… yes, as you may have guessed, I’m still not up to par. I’m currently awaiting more blood results which will hopefully tell me why I feel so awful! I’m extremely lethargic, to the point of wanting to sleep all the time. Nausea and lack of appetite kind of go hand in hand, and just feeling generally weak and feeble! So, what do you do when you can’t do what you want? Well if your anything like me, you get frustrated and annoyed with your body. It won’t buck up and get better in the timescale you want. The swimming pool is calling, and my body isn’t listening! I’d like to say that I’m a good patient, but I don’t think that I am. I want to feel better now…and don’t like having to wait for my body to behave! But that is what I have to do. So I’m sat watching the paralympics, wishing to be that good! (Maybe one day!). But it won’t happen from a static position on my sofa!! So for now, when I can I’m writing, and doing a bit of drawing, but finding myself falling asleep doing that! It was my 13th wedding anniversary on the 22nd. I managed to be out with my lovely wife for a couple of hours, but then had to go home. I could eat a tiny bit of my meal, but had to leave most of it. I felt like such a party pooper! But when things are like this, it reminds you to give it your all when you do feel well, and to embrace every moment.
So for now, it’s back to convalescing on the sofa, and hoping to feel better soon. Then watch out David Lloyd, for a will be in the pool as much as I can be. My mum would have said, ‘these things are sent to try us!’ And I completely agree. But still wish they wouldn’t!!
Lexi's journey through life as an elective amputee for CRPS. 
Hi
Just to wish you a happy belated wedding anniversary. šššš
Sorry to hear you are still not well. It seems you are having a rough time at the moment but hopefully you will get to the bottom of it and get it sorted.
Finally out of hospital now and at home. Finding things strange due to the fact having to sleep downstairs on a single bed. Was offered a hospital bed but not sure, after spending 6 weeks in one. District nurses coming out to change the dressing since it is still healing.
I still find it weird not having that part of my leg anymore and having to change the way I do things and dress. Swelling seems to be taken ages to go down but do see the changes day by day. Just waiting for my rehab appointment for Physiotherapy. Then an appointment at the prosthetic clinic which I’ve been told could take a while.
Phantom limb pain is still a bit rough at the moment and the pain in the surgical site. Also have crps pain in stump so hopefully that will settle. Also I wasn’t out of hospital for 24 hours when I somehow managed to slip off the commode and landed straight on the stump omg that hurt I was just laid on the floor in tears screaming. Hubby was out my phone was not in easy reach. Felt sick and faint so just laid there waiting for it to pass. Managed to shuffle to the couch and get back on it backwards somehow.
So now onwards and upwards for us both.
Brenda x
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