What’s been happening….

Hi there. Well, what a month or so? And where to begin? My road to recovery has not been smooth. I have been suffering with daily flares of pain. Its a battle that my leg fights with itself. The nerve pain sets off the crps, and vice versa. I try not to let the pain get in the way of my everyday life, but it has had to. This isn’t to say that I haven’t been able to do some things… I take advantage of every good moment… So, the good bits. Firstly I’ve finally finished my novel. It’s a victorian thriller/romance. I have been working on this for 2 years. It is currently with some lovely friends who are reading it for me to see if there’s anything I need changing. Then the all important task of hoping an agent will like it and take me on? I have started the second one. It is part of a trilogy.

The copies ready to go out to readers. Fortunately for me, most people wanted digital versions! πŸ™‚

I have also been busy training, as much as I can for the Blesma 11k, which is on the 14th of November. It is a virtual 11k. Next year I’ve just signed up to 2 half marathons, and a triathlon. I’m hoping also to be part of the London marathon πŸ™. I will find out after Christmas weather I’m part of the blesma team. Training has been hard. I am having to squeeze it in whenever I’m able. Which isn’t as often as I’d like. But anything is better than nothing!

Getting out and about for Blesma

Next, I am happy to say that one of my biggest insecurities will hopefully be a thing of the past…In 8 months anyway! I have signed up to invisalign, which is basically like fancy braces. I have to wear a clear shield over my teeth so that they can be straitened over time. They aren’t that comfy and I’m sure I’m speaking differently (although my wife kindly says I’m not!). I have to keep them in for 23 hours a day. Only removing them to eat. It’s great if your a snacker like me, because you have to clean your teeth and the covers every time you eat anything, so snacking is no more! So there’s lots of positives, the main one will be having confidence to smile. Apparently I also have a big over items, which I never knew about. This will also be corrected. I have included a photo of them, and in said photo it shows my teeth (those of a nervous disposition, please skip the next photo). I promised at the start of this that I’d be brutally honest! So here we go…

See… wonkey doesn’t cover it!

Next, I have had a bit of another health issue. My Doctor and I both think I may have Fibromyalgia as well as the crps. Why do we think this? Well, I have most of the symptoms of Fibromyalgia, but then alot of these double with the crps. So I’m undergoing investigations into weather I do or don’t have it. I’m hoping to be proven wrong πŸ™ . But if it is proved, then there’s not much I can do about it, just try to keep plodding along, and not let another thing get in the way of life (as much as I can, anyway!)

I have to mention my amazing wife, who did a 15000 ft skydive last weekend. I foolishly bought it for her for her birthday. Then spent the month in between then and the jump, terrified that something would go wrong, and I may loose her. She is my heart and soul. We have been happily married for 13 years, and together for 15. She is my world, my very best friend. Life without her would be unbearable. So having your world fling herself out of an aeroplane was terrifying. But she was desperate to do one. She did a jump when she was a teenager and loved it, and asked me for years to do another. I finally gave in. I’m happy to report that all went well. I think I nearly had a heart attack 😳, but she was a trooper. Smiled all the way through, and now of course, wants to do another one!

My amazing wife! πŸ‘

Lastly, I have now got a leg again! Yes you read right, I have a leg! The brilliant prosthetist at Bristol mobility centre has made me a leg that I can wear. I can only put her on for a few minutes at a time, but that’s better than nothing. I can’t wear her on bad days, which are more often than not at the moment, but I’m assured by my surgeon that this may get better. So when I can I pop my ‘flo’ on. My leg is named after ‘flo jo’ the sprinter. I still have a hope that one day I may be able to walk, and even run. I will always keep trying. Never give up despite the odds. So here is my leg.

Lovely flo ❀

So, that’s it for now. My 11k will be on Sunday. Can’t wait! Lots more fun to come.

2 thoughts on “What’s been happening….

  1. Hi Lexi

    It was great too read your blog and looking a bit more positive despite the pain that you have at the moment. Did the TMR surgery work or is that still a issue. I know the pain can be so frustrating 😀 and sometimes you just want a solution to take it all away but no matter what you try it does not seem to work. Sometimes people just don’t understand what it is like having something you can’t control and it rules your life. But looking at your pictures your still smiling ☺.
    Glad to hear you finally finished your novel so hopefully you can find some publisher who will take it on board. If not I think there is a site that allows you to publish books yourself but not completely clear about that. Looks like your wife enjoyed her parachute jump, me personally I would be petrified even if I was strapped to someone.
    Well for myself been having physio every week for the past month using the Ppam aid between the parrell bars. My god it ways a ton. But it was nice to be able to stand on two legs even though one is not real. So for a few weeks I was doing that and now walking outside the parrell bars using crutches which is a bit challenging since I’ve nothing to grab hold off if I topple apart from the physio walking beside me. They are wanting me to progress to walking sticks next. Getting a dab hand at going up the stairs in my bum which is not too bad if I am having a good day. I’ve be provided with a shower chair to get about upstairs, so getting from the floor up into it that is a pain but eventually I get up. Also got a bath board so I can get into the bath. It’s fine for lowering myself down from it, but reversing it, is hard due to the fact it has a rim going around it and the battery in my back catches it. So hubby was thinking of a chair lift for the bath, unsure about that.
    I have my first appointment at the disability services which deal with the prosthetic. So will be seeing the consultant, physio and OT too see if I am suitable for one. I am hoping to god they don’t say no because I have worked so hard and been through so much to get this far. The only think that worries me is that they could say no because I still have crps in my stump but so far I have tolerated the Ppam aid, but I do suffer the next day. Any tips on that because it seems to seize up and go into what I would fall horrendous cramp like feeling to the point I cannot bend my knee?
    Keep up the training you will get there and good luck for the 11k virtual

    Regards
    Brenda xx

    Like

  2. Hi Brenda.
    It sounds like you’ve been through alot. With regards to the prosthetic and your crps, you know I have crps in my stump, and I have just started trying to wear a prosthetic again. I used to wear one half the time until my neuromas. Now the crps is quite bad, but I can still tolerate one a bit. The hope is that I will be able to wear it 20% of the time, which is better than nothing. Some walking and mobility is better than none. So fight your corner. It is important for your mental health as well as physical wellbeing to have the chance to have some normality in the face of your new normal. I so hope it goes well for you. The fact you’ve coped with the pam aid shows you should be OK with a prosthetic.
    Mobility is a challenge. I’m still coming up with ways of doing things. Shuffling up the stairs with my wheelchair in tow, so that I can get out and about on my own. I will have to video it one day. People often ask how I do it…its simple when the need overtakes!!
    I hope you have a lovely evening. Let me know how you get on at your appointment. It’s always great to hear how you are getting on. Your doing amazingly well, and have such a good mind set.

    Lexi xxx

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s